LIFE WITH ELLIE
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Ellie at school

Our kids deserve to thrive in public schools alongside their peers!  I'll share links and resources that help ensure Ellie has a safe and successful experience at school.  Hopefully this will help others along the way too.

Prepared at SCHOOL

  • IDEA - Individuals with Disabilities Education Act
  • U.S. Department of Education: A guide to the Individual Education Program

IEP

  • IEP Components by NASET (National Association of Special Education Teachers)
  • School Health Treatment Form (sample)
  • Tool for Sensory or Communication Concerns (sample)
  • ​

IHP/IHCP/HCP

  • Medical Device Information Guide (sample)
  • Developing an Individualized Health Care Plan (IHCP or HCP)
  • Sample IHP
  • Position of the National Association of School Nurses on Individual Healthcare Plans 
  • Supporting Children with Chronic Conditions in the Classroom.  Sample IHP and emergency plan on page 6.

ECP

  • Emergency Care Plan for Virtual Learning (sample)

CLP

Nurse Assessment

  • Guide for Assessing a Student with a Rare Disease​

Muscular dystrophy

Recommendations for School Accommodations: Occupational and Physical Therapy

Tracheostomy and mechanical ventilation at school

  • Tracheostomy in school, what to put in the IEP, Kennedy Krieger
  • Safe and Legal Supports for Students Needing Tracheostomy Care, Michigan School Nurse Guidelines and Resources
    • Decreasing Accidental Mortality of Ventilator Dependent Children at Home
    • American Thoracic Society Clinical Practice Guideline: Pediatric Chronic Home Invasive Ventilation

Tube feeding at school

  • Feeding Tubes in school, what to put in the IEP, Kennedy Krieger
  • Feeding Tube Awareness Foundation: IEPs, IHPs, and 504 Plans
  • Complex Child: Tube Feeding in School​

FOR SCHOOL NURSES

  • Laws and Model Policies that Guide School Health Service Programs in Michigan
  • Delegation of Nursing Functions to Unlicensed Assistive Personnel in a School Setting in Michigan

For teachers

  • Adaptive PE - Physical Education
  • Recommended books list by Kennedy Krieger

CARING FOR OUR MEDICALLY COMPLEX CHILD

  • Care Maps for Children with Medical Complexity

Thanks for being part of our village!
​
​Check out more of our family's shenanigans below or over here -->


Savor Life Nutrition

Food & Nutrition services

Cooking For Tubies

Tube Feeding and Home Enteral Nutrition

​Mother Hen Farms

Moody Broody Flower Growing Foodie!
  • Home
  • Team Ellie
    • Caregiver Training
    • School
  • Help
  • Blog
  • We Recommend
  • Donate
  • Shop