Our kids deserve to thrive in public schools alongside their peers!  I'll share links and resources that help ensure Ellie has a safe and successful experience at school.  Hopefully this will help others along the way too.

Prepared at SCHOOL

• IDEA - Individuals with Disabilities Education Act
• U.S. Department of Education: A guide to the Individual Education Program

IEP

• IEP Components by NASET (National Association of Special Education Teachers)
• School Health Treatment Form (sample)
• Tool for Sensory or Communication Concerns (sample)
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IHP/IHCP/HCP

• Medical Device Information Guide (sample)
• Developing an Individualized Health Care Plan (IHCP or HCP)
• Sample IHP
• Position of the National Association of School Nurses on Individual Healthcare Plans 
• Supporting Children with Chronic Conditions in the Classroom.  Sample IHP and emergency plan on page 6.

ECP

• Emergency Care Plan for Virtual Learning (sample)

CLP

Nurse Assessment

• Guide for Assessing a Student with a Rare Disease​

Muscular dystrophy

Recommendations for School Accommodations: Occupational and Physical Therapy

Tracheostomy and mechanical ventilation at school

• Tracheostomy in school, what to put in the IEP, Kennedy Krieger
• Safe and Legal Supports for Students Needing Tracheostomy Care, Michigan School Nurse Guidelines and Resources
  • Decreasing Accidental Mortality of Ventilator Dependent Children at Home
  • American Thoracic Society Clinical Practice Guideline: Pediatric Chronic Home Invasive Ventilation

Tube feeding at school

• Feeding Tubes in school, what to put in the IEP, Kennedy Krieger
• Feeding Tube Awareness Foundation: IEPs, IHPs, and 504 Plans
• Complex Child: Tube Feeding in School​

FOR SCHOOL NURSES

• Laws and Model Policies that Guide School Health Service Programs in Michigan
• Delegation of Nursing Functions to Unlicensed Assistive Personnel in a School Setting in Michigan

For teachers

• Adaptive PE - Physical Education
• Recommended books list by Kennedy Krieger

CARING FOR OUR MEDICALLY COMPLEX CHILD

• Care Maps for Children with Medical Complexity